• Helpful Information from Johns Hopkins
    Note to everyone. A friend on Facebook posted this so I stole it from him. ūüėÄ
    The following is from Irene Ken physician, whose daughter is an Asst. Prof in infectious diseases at Johns Hopkins University, quite informative.
    * The virus is not a living organism, but a protein molecule (DNA) covered by a…[Read more]

  • Zeposia gets approval
    The U.S. Food and Drug Administration (FDA) has approved Zeposia (ozanimod) oral capsules to treat adults with several forms of multiple sclerosis (MS), including relapsing-remitting MS (RRMS),  active secondary progressive MS (SPMS), and clinically isolated syndrome (CIS).
    There is currently no time frame for dist…[Read more]

  • Janssen, a division of Johnson & Johnson, has submitted an application to the U.S. Food and Drug Administration (FDA) asking for approval of a new oral medication, Ponesimod, for relapsing form of Multiple Sclerosis (MS).
    Ponesimod, formerly ACT-128800, is an experimental treatment that targets the protein¬†sphingosine-1-phosphate receptor 1…[Read more]

  • AdminJim posted an update 1 week ago

    Well, today has not been the greatest of days. When I woke up, I had a headache and my legs were hurting, about an 8 this morning. So The first thing I did was take all of my medicine for the morning. But, I also added some Excedrin. BTW. for those of you that take Excedrin Migraine, take a look at this post –…[Read more]


    A new drug, called Myeliviz, may help doctors determine the exact amount of damage to a brain caused by Multiple Sclerosis (MS) or other brain diseases.


    Myeliviz attaches to the myelin around cells and using a PET scan can show where the most damage is. This will allow doctors to see exactly which parts of the brain have been…[Read more]

  • The past few days there has been a lot of talk about taking Ibuprofen (brand names Motrin, Advil and more) if you have tested positive. I wasn’t going to say anything about this because once I looked into it I thought it was a non-story. Boy was I wrong.


    There has been a lot of information as well as a lot of MISinformation.¬† This all…[Read more]

  • Virus imageThe news about the Coronavirus, COVID-19, gets grimmer and grimmer daily it seems.

    According to the State of Florida, where I live, there have been 5 deaths, one was a traveler, the others were citizens. I do think this is going to get a lot worse before it gets better. And there is a lot of misinformation out there.

    According to the World…[Read more]

  • The Coronavirus, COVID-19, and Multiple Sclerosis
    There has been a lot of talk about the Coronavirus, COVID-19, over the past couple of weeks.

    A lot of the talk has been speculation by people that are not really qualified to talk about the subject. I have waited to write anything until I could find enough information from reputable resources.…[Read more]

  • The Coronavirus, COVID-19
    There has been a lot of talk about the Coronavirus, COVID-19, over the past couple of weeks.

    A lot of the talk has been speculation by people that are not really qualified to talk about the subject. I have waited to write anything until I could find enough information from reputable resources. Unfortunately, even the…[Read more]

  • AdminJim posted an update 1 month ago

    The past couple of days have been hell. It has seemed for the past few years especially that pressure changes, no matter if the barometric pressure is going up or down, have really affected me. And the past few days has been a roller coaster here in Jacksonville, Florida.
    Yesterday, it was rainy all day but we would get periods of sun. So I was…[Read more]

  • It has been about 3 weeks or so since I have let everyone know how I am doing on the Tecfidera (Dimethyl Fumarate).

    I changed Medicare plans at the beginning of the year. I was not aware that my Tec was not on the formulary for my new plan, WellCare of Florida. Tecfidera was released on April 25, 2013. Why it would not be on the formulary by…[Read more]

  • This is about my experience with Tecfidera, the good the bad and the ugly.

    I started on the Tecfidera about two months ago. When I was on the startup dose for a week I did experience a couple of side effects. The minor one was I had a little bit of gastric upset, read that as diarrhea. This never reached the level of being a big problem. I have…[Read more]

  • The Food and Drug Administration (FDA) just came out with a new safety update about gabapentin (Neurontin, Gralise, Horizant) and pregabalin (Lyrica, Lyrica CR). So let’s take a look at the warning more closely to see if there is a need for concern.

    Gabapentin and pregabalin, referred to as gabapentinoids, are FDA-approved for many conditions,…[Read more]

  • AdminJim posted an update 3 months, 3 weeks ago

    Hello all! First, I apologize for being MIA for so long. There has been a lot going on with me, First, I have been off of any Disease Modifying Drug (DMD) for over a year now because I could not afford the $200+ copay on my copaxone. But, the University of Florida, which is where my Neuro is, has a doctor that helps patients with medication. He…[Read more]

  • Treating the earliest signs of multiple sclerosis with the drug interferon beta-1b may reduce the risk of a definitive diagnosis of the condition. It may well help reduce relapse following a definitive diagnosis. These are the findings of new research published in the journal Neurology.

    Early symptoms
    Early symptoms of MS include numbness or…[Read more]

  • AdminJim started the topic MS Possible Causes in the forum Newly Diagnosed 7 months ago

    In Multiple Sclerosis (MS) a person’s own immune system attacks the myelin as if it were a foreign body in the same way our immune system might attack a virus or bacteria.
    Why might our immune system attack the myelin?

    The reasons could be:

    • Genetic ‚Äď Some studies have shown that the genes we inherit from our parents may impact on our ris…

    [Read more]

  • AdminJim posted an update 7 months, 1 week ago

    Welcome one and all!
    I have started this because, to be completely honest, sometimes I need to just vent or I will go nuts.
    But I also started this for a couple more reasons. First, it will be a diary of sorts. It will let me put into writing how I feel, what I am going through, doctors, tests, everything. If you do not have MS you are welcome to…[Read more]

Welcome to Jim&MS!

As you can see we are extremely new so there is one feature we would like to point out and a couple things we would like to ask of you.

First, if you look in the top right of the page you will see a little man in a circle that opens up a menu with accessibility options for our friends that may have challenges. It will allow you to change things like text size, page contrast and more. If you still have a challenge you can contact me here.

The other thing I would like to ask is a favor. If you can, please click on an ad once in a while. I have about $50 a month in expenses related to this site and don’t make even enough in three months to cover one month off of the ad revenue. I am on a fixed income, I am on disability here in the United States. I am sure most of you will know what that means.

And finally.  WELCOME to Jim & MS!